firecat

Notes for Wiscon panel "Feminist Perspectives on Elder Care"

2012-05-28T19:32:09Z

Feminist Perspectives on Elder Care
Track: Feminism and Other Social Change Movements

Panel description
Like child care, the vast majority of elder care is done by women and is frequently unpaid. (When it is paid work, it is often paid extremely poorly.) Many WisCon attendees are dealing with elder care issues, either because they have aging parents, or because they are the aging parent. Are there political solutions we could be working toward? Are there pragmatic solutions we can share with each other? Are there new ideas (for caregiving, accessibility, communities, etc.) that we can offer as a shared vision?

twitter hashtag: #ElderCare

Panelists:
(I did not list most panelists' journal/blog info, for reasons of privacy; if you want your panelist name associated with your blog or journal, leave a comment or send me a private message.)
Criss Moody
Janice Mynchenberg
L J Geoffrion ljgeoff
firecat
Naomi Kritzer

I was a panelist and I was not able to take notes. This is what I remember, and I hope others on the panel and attending the panel —and anyone with questions or information—will contribute comments/resources.

During the panel I was wondering if it would be useful to create a DW and/or LJ community and/or mailing list for eldercare resources for people who are fannish and/or alternative in other ways. Thoughts?
( Read more... )

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Questioning the "from victim to survivor" narrative

2012-01-12T02:03:50Z

via moominmuppet

http://eminism.org/blog/entry/291
"Reclaiming 'victim': Exploring alternatives to the heteronormative 'victim to survivor' discourse"

The article discusses the rigidity of societal narratives around people who have been subjected to violence. I quote from it below the cut-tag.
( cut-tag )

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Cool linkspam of the day

2012-01-10T22:29:23Z

via andrewducker

http://gravityandlevity.wordpress.com/2009/07/08/your-body-wasnt-built-to-last-a-lesson-from-human-mortality-rates/
"This startling fact was first noticed by the British actuary Benjamin Gompertz in 1825 and is now called the 'Gompertz Law of human mortality.' Your probability of dying during a given year doubles every 8 years." The article goes on to explain what we can conclude from this statistic: "By looking at theories of human mortality that are clearly wrong, we can deduce that our fast-rising mortality is not the result of a dangerous environment, but of a body that has a built-in expiration date." (Also, the law refutes the popular notion that thin people don't die.)

via onyxlynx

Face-recognition camouflage: http://www.cvdazzle.com/

Four rhetorical techniques the media or government can use to increase fear and hatred in the populace: http://blogs.lse.ac.uk/africaatlse/2011/12/05/new-lse-research-the-psychology-of-security-threats-evidence-from-rwanda/

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Gee, ya think?

2011-10-22T09:30:20Z

Via moominmuppet

"Mortgage defaults are causing health problems in people over 50" by Annalee Newitz

Excerpt:

The study was led by University of Maryland epidemiologist Dawn E. Alley, who said:
More than a quarter of people in mortgage default or foreclosure are over 50. For an older person with chronic conditions like diabetes or hypertension, the types of health problems we saw are short term consequences of falling behind on a mortgage that could have long-run implications for that person's health.
...
While this information may seem like common sense, this study is one of the only examples where such "common sense" has actually been confirmed scientifically.

Well, I'm glad research like this sometimes sees the light of day.

Original study

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How to deal with judgemental doctors

2011-10-13T20:04:53Z

Anna North of jezebel.com interviewed me about how to deal with doctors who are judgemental of your weight. Her article also discusses how to deal with doctors who are judgemental of your sexuality.

http://jezebel.com/5849489/how-to-deal-with-judgy-doctors

ETA: Be careful of the comments.

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How To Be Sick

2010-10-19T02:01:30Z

I went to a talk on Sunday by Toni Bernhard, the author of How to Be Sick: A Buddhist-Inspired Guide for the Chronically Ill and Their Caregivers. The book is available through Wisdom Publications.

Toni Bernhard is diagnosed with Chronic Fatigue Syndrome.

When I typed "How to be sick" into Google, the second book result that popped up was something called Never Be Sick Again: Health Is a Choice, Learn How to Choose It. I felt angry, because I believe it's a lie that a person's choices can always bring them to full health, and I believe it's a lie that harms people.

Toni Bernhard said at one point that this culture "worships at the altar of wellness." I think that sums up an appropriate response to the "health is a choice" concept.

I'm writing up my notes from the talk here.
( Read more... )
I went to this talk because I have chronic health conditions that affect my mobility and energy levels, and I am a caregiver for my mother, who has Alzheimers. I'm a Buddhist and my study of Buddhism has helped me work through grieving over these things and building a life around them, and I wanted to hear a talk that specifically addressed how Buddhism can help a person deal with chronic illness. I figured that I already knew a lot of what she was going to say, but I thought I'd learn a few things and find out that I'm already doing a lot of what there is to do, and that would help me feel more confident.

I especially liked the phrases "Am I sure?" and "don't know mind." I think I will find those useful.

There was some discussion of envy. I've experienced envy when the OH goes to social events such as cons without me. I want to enjoy cons but I mostly don't unless I plan very carefully. It's not because of mobility issues, it's because I get mentally/emotionally exhausted. (Introversion certainly, but also sensory stimulation.) I realized that the reason I experience envy around this is that I don't accept my social limitation. I think I should be able to fix it or get over it. If I can let go of that belief then I might not feel so conflicted around the issue.

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Article about pain

2010-08-14T19:22:50Z

I expect this UPI article will be all over my reading list but I have to put in my own pocket change before I even go look.

It's annoying that they are being all gender-essentialist about it, but if they're going to be that way, it's good that they are acknowledging that women feel more pain, because usually women's pain is downplayed and ignored.

But then they manage to downplay it anyway. "Let's treat the emotions." Let's get a woman living with pain to say "it's all about just not caring whether you have pain." And not once is it mentioned that maybe we should believe women who have pain, and give them pain medicines to manage their pain.

"Pain different for women, men"
ATLANTA, Aug. 13 (UPI)
(Full article quoted. Emphasis mine.)

Chronic pain is more intense and
lasts longer for women than men and a higher proportion of women
suffer from diseases that bring such pain, doctors say.
Jennifer Kelly of the Atlanta Center for Behavioral Medicine
in Georgia says women have more recurrent pain and more disabilities
from pain-causing illnesses such as fibromyalgia, rheumatoid
arthritis and irritable bowel syndrome, CNN reported Friday.
Hormones could be one reason women bear this burden of pain,
Kelly said, noting the menstrual cycle can be associated with
changes in discomfort among women with chronic pain.
Pain also can have long-lasting consequences, studies show.
Women who suffer menstrual cramps have significant brain structure
changes compared with women who don't, one study found, while other
studies have revealed abnormal brain structure changes in people
with disorders such as chronic back pain and irritable bowel
syndrome.
Women tend to focus on pain on an emotional level, worrying
about how it will affect their responsibilities, whereas men focus
on the sensory aspect, Kelly said, urging doctors to help women deal
with negative thoughts that can make a painful situation worse.
One woman who suffers from arthritic conditions agrees
patients with chronic pain need help changing their mind-set about
pain.
"Part of what helped me was switching out the model in which
I had to be pain free to be happy," Melanie Thernstrom says.
"Realizing I can have some pain, just like it can be raining outside
and I can be happy -- it's all a matter of what level the pain is
at."

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Is Obama fat-bashing?

2009-05-14T21:34:10Z

Before the presidential election, I was disappointed to see Obama commenting that doing away with "obesity" would go a long way toward solving US health care problems. Some fat activists have been communicating with Obama and emphasizing that focusing on "obesity" is not beneficial; if disease prevention is a concern, then better results would be obtained by focusing on Health At Every Size (HAES) principles, including encouraging movement and whole foods.

I've mostly had my head in the sand about this because I don't trust Obama to get this. But I noticed that Yahoo had a news story a couple of days ago: "Obama wants skinnier feds".

But I read the article pretty closely and I didn't see one single quote attributed to Obama that mentioned weight. The article described the practices of seven "work force innovators who were meeting with the president to discuss their best practices." Only two of these descriptions mentioned weight: Microsoft was reported to have an "obesity program" and Safeway was reported to have a “Healthy Measures” program that was "making employees accountable for their weight."

A recent article in the New York Times, "Congress Plans Incentives for Healthy Habits", mentions "Congress is planning to give employers sweeping new authority to reward employees for...weight loss..." Senator Tom Harkin of Iowa is one of the authors of a proposal that would encourage employers to develop programs that focus on "obesity" among other things that are believed to be related to health. Obama is mentioned only once, and not in the context of saying anything about weight.

On http://www.healthreform.gov a search on "obesity" turns up 16 references, most of them from reports on state by state "Health Care Community Discussions." But there are no documents coming out of the White House mentioning it, at least if the search form is working properly.

On http://www.whitehouse.gov today there is a blog post "Health Care Reform: Urgency and Determination." It links to a statement by the president about health care reform. One paragraph made reference to "prevention and wellness programs," but the main principles Obama asked Congress to emphasize were:

first, that the rising cost of health care has to be brought down; second, that Americans have to be able to choose their own doctor and their own plan; and third, all Americans have to have quality, affordable health care.

I'm nervous because "prevention and wellness programs" often focus on weight, but so far I'm not seeing any fat-bashing.

Unfortunately although Obama might be using HAES language, the health reform programs that actually get implemented might not use HAES principles. As such programs begin to be implemented fat activists are going to have to be vigilant to encourage the people developing them to turn away from using changes in weight and BMI as symbols of health improvement. They are lousy symbols of health improvement because they just aren't directly related to health the way changes in exercise habits, say, can be.

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"Food for Thought" Pyramid

2009-05-02T05:51:47Z

This is awesome.

http://www.food-for-thought-pyramid.com/

Designed as a tongue in cheek response to and criticism of the FDA’s Food Guide Pyramid, the “Food for Thought” Pyramid offers an alternative approach to enhancing your health. The “Food for Thought” Pyramid will help you become more conscious of the bigger picture of your health.

http://www.food-for-thought-pyramid.com/articles/pyramidsample.pdf

You can buy it as a poster.

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Productivity!

2009-05-01T06:06:02Z

I have updated the fat friendly health professionals web site and www.polyamory.org.

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