No one studies the effort of managing one's health care

[firecat]

This is yet another thing that people with medical conditions get blamed for—not managing their own care well enough, although according to this article NO ONE studies the efforts required to manage one's own health care.

(Content note: one use of the "O-word")

"But American medicine demands another scarce resource from patients, and that is their time. The time it takes to check in on the status of a prescription, to wait for a doctor, to take time away from work to sit on hold and hope that, at some point, someone will pick up the phone.
...
"There is a risk associated with not measuring patient work: namely, that patients will give up when life gets in the way. This is an especially acute worry for lower-income patients, who often work for hourly wages and have little space to change their schedules."

http://www.vox.com/2016/6/1/11712776/healthcare-footprint

Comments

[snippy]

Also, sinanju works at a clinic that does all the preclearance and scheduling for people who are on the liver transplant list and has told me HIPAA-redacted stories about the trials of getting that work done on behalf of patients.

[firecat]

*shudder*